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National Disability Agencies and Related Resources: The Consortium for Citizens with Disabilities (CCD) - CCD is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The organizations are listed below: Advancing Independence: Modernizing Medicare and Medicaid (AIMMM) AAN - American Academy of Neurology AAP - American Academy of Pediatrics AAPD - American Association of People with Disabilities AAPM&R - American Academy of Physical Medicine and Rehabilitation ACCSES - American Congress of Community Supports and Employment Services ACB - American Council of the Blind ACA - American Counseling Association ADTA - American Dance Therapy Association American Diabetes Association AFB - American Foundation for the Blind AMRPA - American Medical Rehabilitation Providers Association AMTA - American Music Therapy Association ANCOR - American Network of Community Options and Resources AOTA - American Occupational Therapy Association APTA - American Physical Therapy Association ASHA - American Speech-Language-Hearing Association ATRA - American Therapeutic Recreation Association AER - Association for Education and Rehabilitation of the Blind and Visually Impaired APSE - Association for Persons in Supported Employment AMCHP - Association of Maternal and Child Health Programs AUCD - Association of University Centers on Disabilities COPAA - Council of Parent Attorney and Advocates DREDF - Disability Rights Education and Defense Fund, Inc. DEC/CEC - Division for Early Childhood of the CEC Easter Seals Epilepsy Foundation Goodwill Industries International, Inc. HKNC - Helen Keller National Center HECSE - Higher Education Consortium for Special Education IRI - Inclusion Research Institute I-NABIR - Inter/National Association of Business, Industry and Rehabilitation IAPSRS - International Association of Psychosocial Rehabilitation Services IDA - International Dyslexia Association LDA - Learning Disabilities Association of America NAEH - National Alliance to End Homelessness NAAOP - National Association for the Advancement of Orthotics and Prosthetics NAON - National Association of Orthopaedic Nurses NAPSEC - National Association of Private Special Education Centers NARRTC - National Association of Rehabilitation Research and Training Centers NASN - National Association of School Nurses NASP - National Association of School Psychologists NASW - National Association of Social Workers, Inc. NASDSE- National Association of State Directors of Special Education NCLD - National Center for Learning Disabilities NCPSSM - National Committee to Preserve Social Security and Medicare NCPERID - National Consortium of Physical Education and Recreation for individuals with Disabilities NCCBH - National Council for Community Behavioral Healthcare NIB - National Industries for the Blind National Information Center for Children and Youth with Disabilities (NICHCY) NISH - (formerly the National Industries for the Severely Handicapped NMSS - National Multiple Sclerosis Society NOSSCR - National Organization of Social Security Claimants' Representatives NOD - National Organization on Disability NRA - National Rehabilitation Association NRC - National Respite Coalition NSCLC - National Senior Citizens Law Center NTRS - National Therapeutic Recreation Society PVA - Paralyzed Veterans of America SSWAA - School Social Work Association of America SBAA - Spina Bifida Association of America TASH - Equity, Opportunity and Inclusion for People with Disabilities since 1975 TED/CEC - Teacher Education Division of the Council for Exceptional Children T.II.C.A.N.N. - Title II Community AIDS National Network TSA - Tourette Syndrome Association, Inc. UCPA - United Cerebral Palsy Association Intellectual and Developmental Disabilities AAIDD - American Association on Intellectual and Developmental Disabilities Arc-US - The Arc of the United States ASA - Autism Society of America Centers of Excellence by State - Jump to Site - Alabama (Civitan International Research Center) Alaska (Center for Human Development) American Somoa (Pacific Basin Program) Arizona (University Center on Disabilities) Arkansas (Institute for Disability Studies) California (USC Children's Hospital of Los Angeles) California (Tarjan Center for Disabilities at UCLA) Colorado (JFK Partners) Connecticut (A.J. Pappanikou Center for Developmental Disabilities) Delaware (Center for Disabilities Studies) District of Columbia (Georgetown University Child Development Center) Florida (Mailman Center for Child Development) Georgia (Institute on Human Development and Disability) Guam Hawaii (Center on Disability Studies) Idaho (Center on Disabilities and Human Development) Illinois (Institute on Disability and Human Development) Indiana (Institute on Disability and Community at Bloomington) Indiana (Riley Child Development Center at Indianapolis) Iowa (Center for Disabilities and Development) Kansas (Schiefelbusch Institute for Life Span Studies) Kentucky (Interdisciplinary Human Development Institute) Louisiana (Human Development Center at New Orleans) Maine (Center for Community Inclusion) Maryland (Kennedy Krieger Institute) Massachusetts (The Eunice Kennedy Shriver Center at Waltham) Massachusetts (Institute for Community Inclusion at Boston) Michigan (Developmental Disabilities Institute) Minnesota (Institute on Community Integration) Mississippi (Institute for Disability Studies) Missouri (Institute for Human Development) Montana (The University of Montana Rural Institute) Nebraska (Munroe-Meyer Institute for Genetics and Rehabilitation) Nevada (Research and Educational Planning Center) New Hampshire (Institute on Disability) New Jersey (The Elizabeth M. Boggs Center on Developmental Disabilities) New Mexico (Center for Development and Disability) New York (Rose F. Kennedy UCE at the Bronx) North Carolina (Center for Development and Learning) North Dakota (North Dakota Center for Persons with Disabilities ) Ohio (Cincinnati Childrens Division of Developmental Disabilities) Ohio (Nisonger Center at Columbus) Oklahoma (Center for Interdisciplinary Learning and Leadership) Oregon (Center on Human Development at Eugene) Oregon (Oregon Institute on Disability & Development at Portland) Pennsylvania (Children's Seashore House of The Children's Hospital of Philadelphia) Pennsylvania (Institute on Disabilities at Temple University) Peurto Rico (Puerto Rico Institute on Developmental Disabilities) Rhode Island (Paul V. Sherlock Center on Disabilities) South Carolina (Center for Disability Resources) South Dakota (Center for Disabilities) Tennessee (Boling Center for Disabilities at Memphis) Tennessee (Child Development Center at Nashville) Texas (Texas Center for Disability Studies) Utah (Center for Persons with Disabilities) Vermont (Center on Disability and Community Inclusion) Virginia (Virginia Institute for Developmental Disabilities) Washington (Center on Human Development and Disabilities) West Virginia (Center for Excellence in Disabilities) Wisconsin (Waisman Center) Wyoming (Wyoming Institute for Disabilities (WIND)) CEC - The Council for Exceptional Children Cerebral Palsy - Ask the Doctor, a resource for parents and families. The Council on Quality and Leadership in Supports for People with Disabilities (The Council) CDDC - Consortium of Developmental Disabilities Councils Exceptional Parent (EP) magazine - provides information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them. Family Village - a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. Fundación John Langdon Down Joseph P. Kennedy, Jr. Foundation Link to Intellectual and Developmental Disability Research Centers by State - Jump to Site - Alabama (Civitan International Research Center) California (Intellectual and Developmental Disability Research Center at Los Angeles) Colorado (B. F. Stolinsky Research Laboratories) Connecticut (Yale Child Study Center) Florida (Mailman Center for Child Development) Kansas (Schiefelbusch Institute for Life Span Studies) Kansas (Smith Center at Kansas City) Maryland (Kennedy Krieger Institute) Massachusetts (The Eunice Kennedy Shriver Center at Waltham) Massachusetts (The Children's Hospital at Boston) New York (Rose F. Kennedy Center at the Bronx) New York (Institute for Basic Research in Developmental Disabilities) North Carolina (Neurodevelopmental Disorder Research Center) Pennsylvania (Children's Hospital of Philadelphia) Tennessee (John F. Kennedy Center for Research on Human Development) Texas (Baylor Mental Retardation Research Center) Washington (Center on Human Development and Disability) Wisconsin (Waisman Center) NACDD - National Association of Councils on Developmental Disabilities NAPAS - National Association of Protection and Advocacy Services NASDDDS - National Association for State Directors of Developmental Disabilities Services. NDSS - National Down Syndrome Society Colorado Disability Agencies and Related Resources: Intellectual and Developmental Disabilities American Association on Intellectual and Developmental Disabilities (AAIDD) The Arc of Colorado Autism Society of America Colorado Chapter Cerebral Palsy of Colorado, Inc. Epilepsy Foundation of Colorado, Inc. Imagine! - Established in 1963 as the first Community Centered Board in Colorado. Learning Disabilities Association of Colorado Mile High Down Syndrome Association, Inc. Colorado Spina Bifida Association Agencies of the Federal Government The Access Board A federal agency committed to accessible design. Administration on Developmental Disabilities (ADD) is the U.S. Government organization responsible for implementation of the Developmental Disabilities Assistance and Bill of Rights Act of 2000, known as the DD Act. ADD, its staff and programs, are part of the Administration for Children and Families, of the U.S. Department of Health and Human Services. Agency for Health Care Research and Quality (AHRQ) Healthcare research Assistant Secretary for Planning and Evaluation (ASPE), Division of Disability, Aging and Long-Term Care Policy Bureau of Economic Analysis (BEA), U.S. Department of Commerce Centers for Disease Control and Prevention (CDC) Centers for Medicare and Medicaid Services. Previously called the Health Care Financing Administration (HCFA). Congressional Research Service provides access to a list of its publications. FedStats, Links to more than 100 US federal agencies providing data and statistics. Recent reports from the General Accounting Office (GAO) Library of Congress Social Security Administration (SSA) programs, Disability, Old Age Survivors Insurance (OASI), Supplemental Security Income (SSI). Thomas, comprehensive locator information about Congress' legislation. The U.S. Department of Justice ADA home page forms for filing ADA complaints, ADA regulations and technical assistance materials, ADA enforcement status reports, ADA settlements and consent decrees. United States Office of Management and Budget (OMB) latest Federal budget. State Information A list of all states' I/DD agencies Association of University Centers on Disabilities (AUCD) formerly the American Association of University Affiliated Programs (AAUAP). National Association of Councils on Developmental Disabilities (NACDD) National Association of Protection and Advocacy Associations (NAPAS) National Association of State Budget Officers National Association of State Directors of Developmental Disabilities Services (NASDDDS) is the national organization for Directors of State Intellectual and Developmental Disabilities (I/DD) agencies; conducts policy research. National Association of State Medicaid Directors National Association of State Mental Health Program Directors (NASMHPD) National Research Institute. Bibliographic information; data on mental health policy, financing. National Conference of State Legislatures (NCSL), Information on state budget and policy issues; legislation. National Governors Association (NGA), Executive priorities in the states; budget issues. Private Research Institutes Center on Budget and Policy Priorities Economic Policy Institute (EPI) on-line publications related to health policy and managed care including The State of Working America, 1998-99. Mathematica Policy Research organization. Disability Data & Statistics Access to Disability Data @ InfoUse - data resources including chartbooks, statistical charts, tables and surveys. Center on Human Policy, Syracuse University Disability Statistics Center - disseminates statistical information on disability and the status of people with disabilities in American Society. Institute on Community Integration, University of Minnesota National Center for the Dissemination of Disability Research - conducts research, dissemination and utilization activities, demonstration projects, and technical assistance. U.S. Disability Statistics, Cornell University